June 7, 2022

Successful and living with a rare disease with Nico Meyering

Successful and living with a rare disease with Nico Meyering

Nico Meyering, advocate for the disabled with CCHS, discusses life with a rare disease and the importance of every person the disabled community advocating for themselves


Nico Meyering, earned a masters in public administration and has worked in charitable organizations across the country.  He is now working in state government in New York and he lives with a rare disease known as Congenital Central Hypoventilation Syndrome or CCHS.

Nico has given a Ted talk:

·        https://youtu.be/Qb_aVb_o4WM

On this episode of the Successful and disABLED Podcast Nico discusses the various ways people who are diagnosed with CCHS overcome the challenges of this rare disease and live full and productive lives.

Nico talk about he has learned to pace his speaking so he can breathe despite his CCHS.

Nico talks about the importance of every person the disabled community being advocates for themselves and why that is important to help everyone in the community create success in their respite lives.

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